Our baby Scott (1 year old) will have a major skull reconstruction surgery next month. In June this year, our sweet baby Scott was diagnosed with Scaphocephaly due to Craniosynostosis (the premature fusion of skull bones). If left uncorrected, the resulting skull shape can restrict blood flow in the brain and cause intracranial pressure as he grows. To correct this, the surgical team makes a huge incision across the top of the head, then they reconstruct the skull bones by removing and cutting/shaping them, and then replace the skull and sew it all up. It's intense. And, we of course want the absolute best care possible for him, which involves going to a surgeon that is out of network with our insurance, and traveling from Chicago to Dallas. While we realize that we are more fortunate than many, Covid has significantly impacted us financially this year.
For more details please see our Go Fund Me Link. We are so grateful for any help with sharing and spreading the news: http://gf.me/u/y8jzv3
His surgery will be in just over 3 weeks from now, and in gratitude to our friends and family for their support and prayers-- and also in an effort to raise awareness about Cranio, I will be offering a virtual (ongoing) benefit concert for Scott's surgery leading up to Dec 8.
These will be short one-song videos compiled into a youtube playlist, that are uplifting, peaceful, and soothing in nature. I plan to release a new video every couple few days or so. (Singing these pieces also helps ease my own anxiety!)
We also would love to help in anyway we can to increase awareness for this condition and educate others so they can watch for it among the babies in their lives as well.
Notoriously this condition goes by undetected by pediatricians. (We are so grateful for the one who thought Scott may need to see a specialist/neurosurgeon to be properly diagnosed.....after three other pediatricians missed the signs altogether.) So we welcome ANY questions about all things related to this. It's not awkward for us to talk about at all. :) I will be sharing the gofundme link with a new song attached each time.
We are so grateful for your prayers and support at this time!
This short and sweet french art song is called "L'heure Exquise" by Reynaldo Hahn. Text below-
English Translation: Richard Stokes
The white moon
Gleams in the woods;
From every branch
There comes a voice
Beneath the boughs...
O my beloved.
The pool reflects,
Of the black willow
Where the wind is weeping...
Let us dream, it is the hour.
A vast and tender
Seems to fall
From the sky
The moon illumines...
"Becoming a mother changed me. I have more love, passion, and fulfillment in life; which in turn, enriches my artistry. Please join me in normalizing motherhood within the performing artist's culture."
- Rachel Sparrow
Rachel Sparrow is a professional singer, musician,(violin, piano, ukulele) actor, teacher, arranger, writer, and most importantly: a wife and a mommy of two littles. She loves to help parents make everyday life musical with their kids as well as share backstage stories, and performance experiences here. She earned her Master's degree in Voice Performance from Northwestern University, and also holds two Bachelor's degrees in Voice, and Music Education (certified to teach k-12 vocal & instrumental music) from Idaho State University. She is also a certified Music Together Director (music class for birth-5 yrs). See about Rachel.
"Think Outside Your Box" means 3 things:
1. Be Selfless - think beyond your own "box". (and for singers, there's more to life than your voice box!) You're capable of helping and healing others.
2. Feel Empowered to bust out of the proverbial
"box" made of societally-induced-parameters.
3. Be Bold. Innovate. Stretch yourself. You can do anything if you set your mind to it.